Tuesday, June 25, 2013

My brother Michael

This was the only way I could figure out how to share this,thank you all for your support
Michael F. Kneeland, of Plymouth, formerly of Quincy, passed away after a long illness June 21, at the age of 55. He is survived by his children, Michael Kneeland Jr., and Jaime Steinberg, John Steinberg and Jillian Steinberg. He was the loving brother of Donna Morin and her husband Joe of Florida, Donald and his wife Cynthia of Plymouth, George of Plymouth, Lorrie Slattery and her husband Richard of NH, Maria Dean and her wife Lisa of Brockton and the late Catherine McKenna. He also leaves his friend, Janet Barry of Quincy; his Goddaughter, Amanda Kneeland of Plymouth; four grandchildren; and many nieces and nephews. Michael had a passion for history and served in the U.S. Marine Corps during Vietnam and was a member of the American Legion in Quincy. Visiting hours will be held at the Richard Davis Funeral Home, 373 Court St. (Rte. 3A), N. Plymouth, Wednesday, June 26, from 7 to 9 p.m. A graveside service will be held Thursday, June 27, at 10 a.m. at the Massachusetts National Cemetery in Bourne. In lieu of flowers, donations in his memory may be made to the New England Center for Homeless Veterans, 17 Court St., Boston, MA 02108, or at www.nechv.org. Online condolences may be made at richarddavisfuneralhome.com.

Published in The Patriot Ledger on June 25, 2013
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Friday, June 21, 2013

Angry, sad, and round and round a go

You now for the first under my life I suffered unbearable unspeakable abuse. At 17 I have a son Scott G love and call my own. Well the first five years I struggled I worked did the best I could to take care my son but I had my mother that told me all the wrong things.

Now in my 20s I did everything you can imagine and more, I lived on the streets I did drive this I had affairs and then married someone 27 years old on the me I had become a perfect trophy wife.

Then come to find out I inherited a lot of my mother's illness. I was diagnosed with systemic lupus rheumatoid arthritis atherosclerosis congestive heart failure coronary at every disease curriculum vascular disease. I then met they made her my dreams and to after only two months of marriage spends it in ICU with me with pericarditis. From then on they have been countless surgeries hospital procedures kinds of doctors all saying oh you poor girl. You know I got through it, I got through it with my faith in Jesus, my love for my husband and from one sibling my sister Lorrie.

The next bomb was to come three years ago when my memory steady going and they did a memory test in the office and said I want more testing I think you have Alzheimer's it took my breath away, how much more could one person take. I had worked with thousands patients with Alzheimer's and I knew what to face. But they couldn't be so cruel this was in that happened to me. I was immediately scheduled for a pet scan. Being me I was unable to wait until the doctor called me I went to pick up the report myself first page Snowmass no fluid on the brain etc. etc. and trying to the second page ends our surveyor hypo-metabolic atrophy of the bilateral temporal lobes consistent with early-stage Alzheimer's. At first I panicked, I couldn't breathe I screamed as they pounded the dashboard and then out of the blue I said to Joe, now you can take me to the vet and have a chip put in.

The next day my doctor called and said he had his see me right away, I went to his office and told him I already knew. I spent the next several months angry but I did have my church family in my faith and a good friend Diane told me to go home and read the book of Job which I did and still do to this day.

Now what I'm facing since the new scan showed dementia people a more demented than me. All I say and do is twisted and turned left upside down to what they think I should be saying. I'm not allowed an opinion, I'm not allowed to have a thought as everything I say and do is wrong. The people that I love the most Hurt me the most unknowingly I find myself becoming more reclusive spending more time in my PJs not answering the phone not going to church for fear of saying something wrong are having a seizure. I'll did I mention I'm top of this I am a very bad diabetic my right leg is turning black my toes are curling and I can't take much more. If it was not from my faith in Jesus this would've been over years ago.

I'm blessed with Joe who continues to love me too is made that commitment to get the materials that he needs to help me live the rest of my life. I have my son Scott said he wouldn't trade me as a parent followed parents in the world that broke my heart as I spent so much time away from him. So I'm taken the horse by the rains and am living my life I said my life the way I want to and I don't give a damn what people have to think anymore it's my life my journey my walk and ultimately my death. Thank you all for following this I hope someday it's collected and used to help people.

Monday, June 17, 2013

Been a while shoot me please

 Well hello everyone, it has been a while since I said I would follow this through. This blog is very difficult for me to do as it reveals my deepest thoughts and fears moods ECT.
A lot has happened since I last posted the second scan that I got showed dementia was sitting in. A fine now that I cannot remember what I had for dinner the night before. I keep forgetting conversations that I've had with my husband.

He was really upset last week when he couldn't find me at 2 AM and he found me sleeping outside in the carport. I'm afraid of the dark so that was difficult for me. I need help getting dressed. I find myself staring out into nothing in constantly hearing what you thinking, I'm not thinking anything I'm just blank.

I was talking to my doctor about the seizures I've been happening she told me that between the strokes the CIA's concussions blood supply all of that contributes to my seizures. I find that the simplest task of making dinner which I love to do I get frustrated I can find things I can't remember recipes and I get angry then comes the seizures. I have them when I'm sleeping and it scares Joe to death. I really want my son can be in my granddaughters here but is that being selfish do I need them around to watch me fall into nothingness? It hurts so bad to try to figure out what is right and what is wrong when I don't even know.

It's a love my family on Facebook and my church family let me know somebody's always there. Hottest thing I'm facing now is to know I can't travel and I can't see my brothers. One brother is very ill and apparently my other brothers are too busy with your own lives to come see me before I die. Oh did I begin to tell you, forget to tell you let me remind you I have 33 different diagnoses. The primary one being systemic lupus atherosclerosis in large part poor balance due to her stroke three primary client and disorders with the mu gene, I also have obstructive sleep apnea and yes worst of all diabetes insulin-dependent. I mention this because the other night Joe always gives me my long acting insulin I forgot he gave it to me" so I gave it to myself again I dropped my sugar to 40. New and final paragraph

My best friend through all of this has been my sister Lori she also was very L but she is my greatest supporter as I go through this. She knows a lot about Alzheimer's on a lot of things she says hurts my feelings and knows she doesn't mean it didn't always seems like she's judging me while correcting me and I feel I cant be honest with her so I just say yes and drop it. It hurts that she so far away and I miss my nephews but I'm never going to be me again and I am so angry that I can't see straight. I would not wish this on my worst enemy and I hope those of you that follow will understand how we feel at this stage in the disease.

I do want you all to reach out to Joe, he is on Facebook under Joe Morin, he has no clue as to what he's in for. I've been through this with patients have had any jazzing no or realize that I'm leaving him in my mind. We just renewed violence in God's house and I will always be his wife but I'm glad to become childlike keys than half the base of me be me dress me restrain me fight me off as a throw things that are Jake God please help them understand and get help. I love you Joseph Michael Morin. Well I guess that's enough for today I'm in tears now I have got to leave but I will keep posting again as long as my brain functions. To those of you who have family with Alzheimer's learn about it, study it and always remember the person before you is not a child is the person you love night